A Metamorphosis: The Death and Life of Tim LaFollette.

September's end brings a desolate loneliness. I feel adrift, without anchor. The waters are calm on the surface, but I can tell a storm is brewing. I haven't much stamina left. Still, I must weather the storm.

Tim LaFollette's body died on a Tuesday. I was driving back to Greensboro from Carrboro listening to Nick Cave and the Bad Seeds' The Good Son, a particularly mournful record filled with songs such as "Lament," "Sorrow's Child," and "The Weeping Song." Melodramatic, self-indulgent and beautiful. I had just finished meeting with a naturopath, who helps me with physical and emotional maladies.

I had spoken with her about the news that I'd received the previous Friday that Tim was in a coma, not being fed and not expected to last past the weekend. She asked whether I'd been to see him yet. I told her I had not. She recommended that I go see him, that I hold his hand, kiss his forehead, tell him I love him so he'll know. Because people in comas can hear, can sense what is going on around them, she said.

Once home, I was filled with an overwhelming fatigue and laid down for a brief nap. A knock on the door awoke me. By the time I rose to answer, the visitor was gone. Very soon after, I received a text message saying Tim was gone.

One more man gone One more man gone One more man......

The news spread like wildfire on the social media outlet to which we all have become addicted. My friend, Lee Wallace, called to say he'd heard the news and to see how I was doing. I told him that I might need some Stella time.

Lee Wallace has a dog named Stella that I take on walks. Lee will be able to walk Stella again after he gets a new set of lungs. But for now, I enjoy the pleasure of her company whenever I decide I need a jaunt and when schedules align.

I picked Stella up from Lee's house and we proceeded along one of her favorite routes: down by Lindley Park Elementary school, briefly along Market to the Arboretum. It was a particularly beautiful day with the sky a vivid hue of deepest blue and clouds aggregating in what appeared to be regular patterns throughout the sky. It seemed as if they were worshiping from their perches on church pews. The shadows had that depth that comes only at the end of summer. Delicate fragrances of fading flowers hung on the air. Everything was a miracle to behold. And I thought, what a great day to die.

Stella and I walked for a very long time. And when I decided it was time to head back to Lee's house, I began to cry. Depths of emotion were welling up and I could not allow their ultimate release. I cried as much as I comfortably could and took Stella back to her backyard paradise.

Lee reclined in a hammock under an immense spread of trees with a book propped on his chest and music by his side. Stella and I joined him for a while: Stella, digging a hole in which to cool down from her walk, I chatting with Lee about nothing in particular.

An earthquake occurred. Neither Lee nor I felt it. Lee's wife, Leslie, called to alert him that this had just happened. At this news, I planted my feet firmly on the ground as if expecting any residual rumblings to reveal themselves to my soles. I breathed extra deeply as if there might be a trace of a quickening of the air. But there were no revelatory sensations.

For the rest of the day and a few days after that I felt slightly off balance. I kept bumping into things and was more forgetful than usual. I wandered around in a confused state wondering if the earthquake had tilted the earth on its axis a bit.

Tim's memorial service was to happen a month from his death. Like so many people, I use the formal funeral format for official grief processing. In this instance, I would have to postpone this process, which is a lot like taking a shit. You just need to empty your emotional colon. Often, there is lots of shit built up and you must undergo a series of prolonged shits. Eventually, in theory anyway, all the shit comes out.

I was constipated for a month.

At last the day of the service approached. By this time I'd endured a couple of additional unhappy incidents in the month of September and was still reeling from the most recent. I felt, almost, like there was no grief for Tim, like I had somehow miraculously processed it all without really crying and going through the usual grief-like sensations. However, I realized that there was a very real grief hanging out in my emotional colon and that it might be expeditious to use the forum of Tim's memorial as a sort of emotional enema. A colon cleanse was needed.

I went to the service directly after work in extremely casual jean, plaid shirt and tennis shoe attire, which I think was indicative of my recklessly non-intentional attitude towards this event. I was, almost, disrespectful. Yet I played the part of the participant with a modicum of small talk and a friendly smile upon greeting people I knew.

I did not expect to be overwhelmed by grief. I did not expect to experience a sudden realization that death is final, that Tim is gone, that I will never again be able to converse with him, that I will never offer him comfort in the form of a foot rub or a kiss to the forehead. I did not expect this surge of emotion to present itself so powerfully. You'd think I'd be an old hand at these matters. But no. The brilliance of this life is that just when you think you've got it all figured out, the earth quakes without your realizing it. And you have to make heads and tails of everything that's just been flipped.

In a Quaker-style service, people sit in silence and speak only when moved to do so. I sat in silence trying very hard not to break into hysterical sobs, not to wail aloud with the sort of primal abandonment I enjoy. I attempted to maintain dignity. Likewise, I tried very hard to prevent myself from saying anything at all, thinking that responsibility should reside with those who were closer to Tim than I was.

I controlled my urge to have a primal wail. I maintained a degree of dignity. But damned if I didn't get on my feet and start talking.

Words came out of my mouth with very little intervention from my brain. I remember having the desire to speak concisely. I remember having the desire to keep myself from crying. But the emotion came rushing forth. I stopped myself to regroup. I paused and looked down at the ground as if to say Support me harder, dammit! Hold me up, here! I'm caving! And I continued to speak. But my voice grew higher in its pitch and I realized it had become that stereotypical Mary Tyler Moore voice that betrays emotion when trying to be so strong. I somehow finished what needed to be said about Tim, about his generosity and kindness, about my feelings of inadequacy in the face of the tasks that needed to be met for his care, about his patience with me while I grappled with all this inside myself as he taught me, he himself, how to more accurately suction the phlegm from his lungs.

I sat down. I received a gracious pat from the people on either side of me. And I sat. And I thought the wall had broken and the emotion had been let out. Or to revert to a previous metaphor, I thought the poop had vacated my bowels and the toilet bowl had been flushed. But then I saw Lis, who is my sister, my heart - one of those rare beings with whom one connects so completely that words are not necessary to achieve understanding.

We hugged. And I shuddered with silent sobs against her shoulder. I felt as if shock waves of grief transferred into her delicately defined frame from my crude one, but somehow they reverberated back and forth until they dissipated. I confessed to her that I had not seen Tim for six months, that I had decided to take a break from doing my weekly home care visits in order to focus on some of my own challenges. Lis had done the same. She said that Tim understood. That it was alright. She conveyed a sense of love through these words and I felt absolved of my sins.

The saga of Tim LaFollette is not over.  His entire journey with ALS is documented in the "Often Awesome"  web series.  People continue to watch it, share it and be inspired by Tim.  The Often Awesome Army continues to raise funds to help those living with ALS, it continues to raise awareness about this wretched disease, and it continues to be bound by the love of one great man.  But beyond that, Tim left an indelible mark on my psyche.  He taught me about love and service.  He taught me about generosity of spirit and courage.  I have no choice but to carry his teachings with me for the rest of my journey through this life and hopefully pass them on to someone else.

Tim LaFollette lived a life and died a death of transcendent beauty.  In this way, he is eternal.     

Dear Lorenzo

Dear Lorenzo,

I received the gift you sent. Thank-you. And I finally sorted out its meaning. It took me all day to connect the dots. But I finally got it. I am so grateful!

Ever since the day that I saw you at the Cancer Center, my thoughts have been with you. I've been wondering about the state of your body and wondering how you were coping with it. I've been sending you love daily. I'm sure it has been a difficult journey. And now that it is over, I can hear your laughter.

Prior to receiving your gift, I had Christmas with my family. I drove to my mom and dad's house on Christmas Eve, listening to my friend's radio show on the way. You would love my friend. Dr. Roots, we call him. He plays old school rhythm and blues the first hour of his show and reggae the second. Dr. Roots is a holy man. He truly emits Love and Light. Just like you. During a voice break, he wished his listeners a blessed Christ mass and he told us to, "Make a joyful noise!"

Something inside of me clicked into an awareness of a new level of responsibility. I have to step it up in my life. It is not enough to practice gratitude, to feel the grace of abundance. I must celebrate this gratitude by making "a joyful noise." I must speak my gratitude, sing it, yell it, clang it, bang it, ring it, strum it, clap it, tap it. I must sound off: "Present!"

I was so overcome by the Love issuing forth from the radio on Christmas Eve that I called Dr. Roots to thank him. In his gracious manner he told me that he can only give what others reflect back to him. So he thanked me for receiving and reflecting the Light.

I slept under the Christmas tree at my parent's house. The 50 Christmases of my life swirled in my mind as I watched the twinkling lights reflect off the ceiling and walls. They all - even those that occurred during the most turbulent of times - contain the commonality of gratitude, peace and supreme Love. No matter what, I always seem to be able to find these qualities.

Christmas morning was charming. My mother and I exchanged gifts before anyone else awoke. My sister cooked breakfast for my mother and me. My father had a terrible chest cold and sequestered himself off from the rest of us. I crept in to see him when I knew he was awake and gave him my love. I took Toby the dog for a walk through the woods. We came back covered with beggar's lice.

The day progressed. My great aunt arrived with her date. She is a youthful 86 and is another Being of Light. I am certain the two of you will meet one day. My brother, my nephew, my other sister and my brother-in-law arrived and we sat down to our Christmas feast. Afterwards, we exchanged gifts: material goods that symbolize our love for each other. My gift to everyone was the random chaos of a dirty Santa game. I had procured lots of items for cheap or free from various sources, wrapped them in Christmas packaging and placed them in a pile. Each member of my family proceeded to pick from the pile or take the gift of someone else that had already been opened.

The results were unexpected. A temporary fight broke out between my two sisters over an article of clothing. My nephew sulked over receiving no toys. My brother ended up with the toy-like gifts that I had hoped my nephew would somehow receive - as well as a relatively tacky beach shirt, which seemed to make him exceedingly happy. This is the same brother with whom I have a long and tumultuous history. I think I completely unintentionally managed to make him the happiest of anyone.

I can hear you laughing as I write this.

After the gift-giving extravaganza, people began to leave. My father joined me and my sisters in the living room and all three of them proceeded to fall asleep. It was at this point that I began to feel the inexplicable heaviness setting in. I arose and began to gather all my things. Before I left, I showed my father a couple of videos of arias from Rigoletto sung by Renato Bruson. I am overcome with emotion when I see these videos. And I attributed my approaching sorrow to having watched them.

I left my parent's house and drove back to Greensboro. On the way, I called my daughter to see how her Christmas had been. We chatted briefly and upon hanging up I felt the sorrow becoming more pronounced. I miss her. And my son. He lives in New York now as well. I don't think you met him. He's an impressive entity. At any rate, I attributed the welling sorrow to the fact that I missed seeing my children on Christmas.

Once home, my boyfriend came over. We laid in bed together reading. I turned to him at one point and said, "I don't know why I feel so sad." He asked me if anything had happened. "No," I said. "There is no reason for me to be sad. It was a good day. Nothing bad happened." He held me as tears rolled down my cheek. I breathed deeply and returned to my book. I read until the heaviness set in and pulled me under the waves of consciousness.

And then I received your gift. It took the form of an elaborate dream. I was at a university. I was marginally involved in theater projects as well as discussions on film and film-making. I belonged to a writing group. I felt completely vital. Everything was of quintessential importance in my mind - each passing conversation, each spirited discussion, each performance, every creation. I was in my element. And radiantly happy. A man took an interest in me. And I welcomed his interest happily, not as an indicator of an impending romance but as an indicator of the creative life ahead of me.

I awoke this morning wanting to linger in my dreamland. But I arose and proceeded to check in on my facebook world. It was in this way that I learned you died last night. I was immediately relieved to understand the source of the sadness I had experienced. On some level, I sensed and responded to your passage without knowledge of it. I did not feel the impact of loss upon receiving this news. But I felt more and more confused as the day wore on.

At work, when Pam learned of your death, she said, "Now we can talk to him whenever we want."

Doug reminded me that "we have to stay strong."

Cindy's eyes welled up with tears when she learned.

I found myself becoming irritable at work. I spoke words of veiled anger. I grew weary and depressed.

After work, I spoke with Mekare about your passage. She informed me that it is possible to receive teachings from you during this time if I remain open.

My boyfriend came over to my apartment and I immediately had to lie down. He approached my bed to check on me. Tears slid down my cheek as I told him that you had sent me a dream but I did not understand its meaning. He asked me what the dream was about and as I spoke of the events in it, I realized what you needed to tell me.

To experience awe and wonder is to be in my right station in Life. To be aware of the tiniest, most seemingly insignificant details and marvel at their existence. This and nothing more is my purpose: to exist in joyous wonder.

When this became clear, I saw your beaming face as you exclaimed with exuberance, "You got it!" And then I heard your hearty laugh.

Your generosity of spirit carried me through many troubling times. You gave me so much during your sojourn on earth. And now that you are traveling on your next adventure, I anticipate periodic messages from you. We will continue our journey together, despite the fact that I will no longer see your physical body. I can feel you as strongly as ever.

I love you. Be happy and free. All is as it should be. All is well.