A Metamorphosis: The Death and Life of Tim LaFollette.

September's end brings a desolate loneliness. I feel adrift, without anchor. The waters are calm on the surface, but I can tell a storm is brewing. I haven't much stamina left. Still, I must weather the storm.

Tim LaFollette's body died on a Tuesday. I was driving back to Greensboro from Carrboro listening to Nick Cave and the Bad Seeds' The Good Son, a particularly mournful record filled with songs such as "Lament," "Sorrow's Child," and "The Weeping Song." Melodramatic, self-indulgent and beautiful. I had just finished meeting with a naturopath, who helps me with physical and emotional maladies.

I had spoken with her about the news that I'd received the previous Friday that Tim was in a coma, not being fed and not expected to last past the weekend. She asked whether I'd been to see him yet. I told her I had not. She recommended that I go see him, that I hold his hand, kiss his forehead, tell him I love him so he'll know. Because people in comas can hear, can sense what is going on around them, she said.

Once home, I was filled with an overwhelming fatigue and laid down for a brief nap. A knock on the door awoke me. By the time I rose to answer, the visitor was gone. Very soon after, I received a text message saying Tim was gone.

One more man gone One more man gone One more man......

The news spread like wildfire on the social media outlet to which we all have become addicted. My friend, Lee Wallace, called to say he'd heard the news and to see how I was doing. I told him that I might need some Stella time.

Lee Wallace has a dog named Stella that I take on walks. Lee will be able to walk Stella again after he gets a new set of lungs. But for now, I enjoy the pleasure of her company whenever I decide I need a jaunt and when schedules align.

I picked Stella up from Lee's house and we proceeded along one of her favorite routes: down by Lindley Park Elementary school, briefly along Market to the Arboretum. It was a particularly beautiful day with the sky a vivid hue of deepest blue and clouds aggregating in what appeared to be regular patterns throughout the sky. It seemed as if they were worshiping from their perches on church pews. The shadows had that depth that comes only at the end of summer. Delicate fragrances of fading flowers hung on the air. Everything was a miracle to behold. And I thought, what a great day to die.

Stella and I walked for a very long time. And when I decided it was time to head back to Lee's house, I began to cry. Depths of emotion were welling up and I could not allow their ultimate release. I cried as much as I comfortably could and took Stella back to her backyard paradise.

Lee reclined in a hammock under an immense spread of trees with a book propped on his chest and music by his side. Stella and I joined him for a while: Stella, digging a hole in which to cool down from her walk, I chatting with Lee about nothing in particular.

An earthquake occurred. Neither Lee nor I felt it. Lee's wife, Leslie, called to alert him that this had just happened. At this news, I planted my feet firmly on the ground as if expecting any residual rumblings to reveal themselves to my soles. I breathed extra deeply as if there might be a trace of a quickening of the air. But there were no revelatory sensations.

For the rest of the day and a few days after that I felt slightly off balance. I kept bumping into things and was more forgetful than usual. I wandered around in a confused state wondering if the earthquake had tilted the earth on its axis a bit.

Tim's memorial service was to happen a month from his death. Like so many people, I use the formal funeral format for official grief processing. In this instance, I would have to postpone this process, which is a lot like taking a shit. You just need to empty your emotional colon. Often, there is lots of shit built up and you must undergo a series of prolonged shits. Eventually, in theory anyway, all the shit comes out.

I was constipated for a month.

At last the day of the service approached. By this time I'd endured a couple of additional unhappy incidents in the month of September and was still reeling from the most recent. I felt, almost, like there was no grief for Tim, like I had somehow miraculously processed it all without really crying and going through the usual grief-like sensations. However, I realized that there was a very real grief hanging out in my emotional colon and that it might be expeditious to use the forum of Tim's memorial as a sort of emotional enema. A colon cleanse was needed.

I went to the service directly after work in extremely casual jean, plaid shirt and tennis shoe attire, which I think was indicative of my recklessly non-intentional attitude towards this event. I was, almost, disrespectful. Yet I played the part of the participant with a modicum of small talk and a friendly smile upon greeting people I knew.

I did not expect to be overwhelmed by grief. I did not expect to experience a sudden realization that death is final, that Tim is gone, that I will never again be able to converse with him, that I will never offer him comfort in the form of a foot rub or a kiss to the forehead. I did not expect this surge of emotion to present itself so powerfully. You'd think I'd be an old hand at these matters. But no. The brilliance of this life is that just when you think you've got it all figured out, the earth quakes without your realizing it. And you have to make heads and tails of everything that's just been flipped.

In a Quaker-style service, people sit in silence and speak only when moved to do so. I sat in silence trying very hard not to break into hysterical sobs, not to wail aloud with the sort of primal abandonment I enjoy. I attempted to maintain dignity. Likewise, I tried very hard to prevent myself from saying anything at all, thinking that responsibility should reside with those who were closer to Tim than I was.

I controlled my urge to have a primal wail. I maintained a degree of dignity. But damned if I didn't get on my feet and start talking.

Words came out of my mouth with very little intervention from my brain. I remember having the desire to speak concisely. I remember having the desire to keep myself from crying. But the emotion came rushing forth. I stopped myself to regroup. I paused and looked down at the ground as if to say Support me harder, dammit! Hold me up, here! I'm caving! And I continued to speak. But my voice grew higher in its pitch and I realized it had become that stereotypical Mary Tyler Moore voice that betrays emotion when trying to be so strong. I somehow finished what needed to be said about Tim, about his generosity and kindness, about my feelings of inadequacy in the face of the tasks that needed to be met for his care, about his patience with me while I grappled with all this inside myself as he taught me, he himself, how to more accurately suction the phlegm from his lungs.

I sat down. I received a gracious pat from the people on either side of me. And I sat. And I thought the wall had broken and the emotion had been let out. Or to revert to a previous metaphor, I thought the poop had vacated my bowels and the toilet bowl had been flushed. But then I saw Lis, who is my sister, my heart - one of those rare beings with whom one connects so completely that words are not necessary to achieve understanding.

We hugged. And I shuddered with silent sobs against her shoulder. I felt as if shock waves of grief transferred into her delicately defined frame from my crude one, but somehow they reverberated back and forth until they dissipated. I confessed to her that I had not seen Tim for six months, that I had decided to take a break from doing my weekly home care visits in order to focus on some of my own challenges. Lis had done the same. She said that Tim understood. That it was alright. She conveyed a sense of love through these words and I felt absolved of my sins.

The saga of Tim LaFollette is not over.  His entire journey with ALS is documented in the "Often Awesome"  web series.  People continue to watch it, share it and be inspired by Tim.  The Often Awesome Army continues to raise funds to help those living with ALS, it continues to raise awareness about this wretched disease, and it continues to be bound by the love of one great man.  But beyond that, Tim left an indelible mark on my psyche.  He taught me about love and service.  He taught me about generosity of spirit and courage.  I have no choice but to carry his teachings with me for the rest of my journey through this life and hopefully pass them on to someone else.

Tim LaFollette lived a life and died a death of transcendent beauty.  In this way, he is eternal.     

The Mensch

Twisted, knotted stomach-ache tension. Repressed anger. Grief on hold.

This morning I awoke with a very strong feeling that I needed to call out of work. A mounting stress which has become unbearable has pushed me to the point of breakage. I considered all the ways in which stress disrupts the body's balance. I considered the delicate state my body is in on any given day due to cancer recovery and ongoing fights with an auto-immune condition no one seems to know anything about.

But today is Thursday - a typically busy day due to Planet Care's campaign to fight childhood obesity. From 4:00 to 8:00 p.m. children eat for free. And many people take advantage of this opportunity to score free vittles. I considered calling out for the first four hours of my shift and working the second four hours during peak traffic. But a bizarre sense of obligation often overrides my inner knowing. I proceeded to work despite my tenuous mental health.

I cried on my way to work. I tried calling my boyfriend for moral support, but my phone's service had been suspended due to non payment. I sighed as I realized that this was yet another manifestation of my inability to function on a material world level.

I proceeded to work, sniffling, thinking about how I would call my mobile phone service during my lunch break to make a payment and have service restored. This thought distracted me from the dread thoughts: the imagined conflicts and customer traffic jams I would need to face during the day, the inevitable sighting of and potential interaction with The Bully, the confinement to a small cubby in which I must stand for eight hours. I managed to allow the logistical planning of telephone restoration to supercede all fear and trembling, at least long enough to get me to work.

What is this intangible sorrow?

I arrived at Planet Care and felt very much like I was walking on shaky ground. I recognized there was no way to combat the overwhelming emotion I felt. I must simply allow it to exist and try to get through the day to the best of my ability.

Evelyn's death? I was not that close to her. But it seems like such a tragic undefinable loss. The anniversary of Hurricane Katrina and a collective sorrow re-lived? The flooding in Pakistan creating ripples of loss and tragedy? My inability to heed my body's inner knowing? My blind allegiance to the timeclock?

I found myself less tolerant of customers on their cell phones who refused to make eye contact or verbally acknowledge the person who is selling them their goods.

I collapsed with relief and regained a sense of hope and well-being when a Friend happened through my line.

I daydreamed about all the possible ways I could make money in this world so that I could leave Planet Care and all the stress it creates in my universe.

The customers piled up. Lines stretched out to the drink cooler and beyond. Where are the other cashiers? I decided to work at a deliberate pace, to avoid feeling pressured to speed up, to allow the line to lengthen if it must.

An elderly woman began to unload her cart onto the conveyor belt as I finished a transaction with another customer. When I shifted my attention from the completed transaction to the transaction-in-waiting, I was surprised to see not an elderly woman, but a man - a regular - with a bag of nuts. He made some comment to the elderly woman indicating he had a hot cup of coffee waiting. A bag of nuts and a hot cup of coffee compelled this man to ask this elderly woman - with breathing tubes in her nose and portable oxygen and cane - to allow him in front of her.

He acted as if this was ok. I decided to let it go.

I maintained composure despite challenges which come in the form of products that won't ring up, products that ring up at prices other than those indicated on their signs, the constantly ringing phone which cashiers are expected to answer. I continued being helpful and polite though not exceedingly enthusiastic about it.

The Thursday night mayhem began as parents brought in their children, tired and hungry from a day at school, dance classes, tai kwon do, piano lessons. With the rise in anxiousness to get food and eat food comes a general impatience.

I was ringing out a woman when another woman approached the conveyor belt from my right. Typically, traffic moves from my right to my left. Sometimes people come in "backwards" - that is to say from my left, which is fine as long as I am not helping another customer to my right.

The woman to my right began to unload her groceries onto the conveyor belt. A man approached from my left, passed the woman I was currently serving and got in front of the woman unloading her groceries. The words escaped my mouth before I stopped to consider the possible ramifications for uttering them:

"Did you just break in front of this lady?"

The man puffed up and said, "Well I don't know if you could call it breaking in front of her! She was coming from that direction, I was coming from this direction. I got here first."

Yeah, motherfucker, you got here first because you jumped in front of the other lady.

Fortunately for me, the cashier behind me beckoned the man to her lane. There were no customers competing for service there. He immediately jumped at this opportunity. "This works out better for me!" he said.

The woman whose transaction I was finishing said, "He was here first." I became confused. Her words did not match my experience of the moment. After she left, I spoke to the woman - who I perceived had been wronged. I told her that I had witnessed two men breaking in front of women today and it pissed me off. "They think they run the world! They think they're always right!" It was an overly dramatic response to some inner turmoil I could not yet define.

This woman simply nodded wearily, looked at me in solidarity and said, "Thank-you for being a mensch."

"A what?" I asked.

"Mensch is Hebrew for Human Being. It's a good thing."

I thanked her for this high compliment. I told her that was the best thing anybody could say to me.

A mensch.

This word energized me. There was an hour and a half left in my shift. I felt like I could last until that time. I felt like I had something positive to hold onto.

The word "mensch." Given to me by a mensch. A sign of Humanity in a world where Humanity seems harder and harder to detect.